Epilepsy-temporal lobectomy, AEDs and societal stigma

---

Torie Robinson

Epilepsy Sparks, UK

: Int J Ment Health Psychiatry

Abstract

---

Torie Robinson (the patient) aged 37 with refractory, left temporal lobe epilepsy in a setting of left hippocampal sclerosis. Increase in seizure severity and frequency over 30 years with associated depression, anxiety and emotional disorder. In corporate finance role, Torie travelled back to London (from Melbourne) to obtain NHS help with worsening seizure severity, clusters and associated health issues. For surgery exploration testing, Torie had EEG, video telemetry, fMRI, psychological evaluation/neuropsychology assessment and IQ test, which led to left temporal lobectomy in 2013. Post-operative diagnoses, seizures partially controlled (outcome Engel class 2), significant reduction in frequency and severity. Torie has had 5 tonic-clonic seizures post-op, has absence or focal seizures every 2/3 months, with new shudders yet to be investigated by consultant. Torie remains on Lacosamide, Lamotigine, Clobazam (for international travel when sleeping pattern disturbed), Venlafaxine and Levothyroxine. With improved neurological and psychological stability, quality of life and life expectancy, Torie is now a motivational and international public speaker regarding epilepsy, disability and psychiatric health.

Biography

---

Torie Robinson is the Founder of Epilepsy Sparks, UK. She is currently working with the UK Government DWP, Epilepsy Action (accredited volunteer/trainer), featured in Huffington Post and numerous other publications. She is an active international public speaker and consultant regarding epilepsy, disability, mental health, diversity and inclusion. Her purposes are to enlighten the uneducated, reduce the stigma held against those with epilepsy and hold organizations accountable for corporate social responsibility when it comes to employment. She has featured in both conferences and various media platforms in the UK, Australia and Europe.

E-mail: torie@epilepsysparks.com